Random hate

Hello all!
Thanks muchly for spreading the news about Burzynski! Far too many people to name individually, though again, I must thank Robert Dougans of Bryan Cave for helping me with the legals.

Just received this in my inbox. Found it rather amusing, so thought I might as well post it.

Name: Russ Moores

Email: [REDACTED]

Comments: I just wanted to let you know i just wasted an hour of my life reading your blog.
You are messed a messed up juvenile with a big mouth. Perhaps maturity will serve you well and help you pass this period of adolescence and wasted energy.
I wish you well in your search for perfect health and suggest you allow others to do the same. Try and let go of your bitterness and stop looking for attention from negativity.
Try and be more positive and less of a drama queen. Your negative opinions serve nobody well, including you.

62 Responses to “Random hate”

  1. Amber K November 30, 2011 at 3:29 pm #

    http://www.morganoilusa.com/corporate_information.php
    I would think this guy has better to do than write emails to bloggers. Perhaps he’s a big donor to Burzynski? I guess he doesn’t realize email addresses are googleable.

  2. Pete Knight November 30, 2011 at 3:32 pm #

    I thought your blog was rather positive myself, but then it doesn’t go against my misguided belief in woo-ish alternative medical claims.

    I like Tim Minchin’s quote: What do you call alternative medicine that has )web proved effective? – Medicine!

    I would advise against publishing this guys name though, and displaying his e-mail address is a definite no-no.

  3. Ross Quinn November 30, 2011 at 3:35 pm #

    I wonder if this guy works for an outsourced web designer or is maybe a contracted cleaner. He certainly can’t be PR, they mustn’t have any because their statement had spelling and grammatical errors abound.

    It seems awful cultish what goes on at crazy clinic. People are encouraged to believe by ‘miracles’ which when put under any sort of scientific rigour would fail. Also if any criticism is made it’s an attack philosophy rather than a defend one. If you are confident a criticism should be a challenge to prove you are right rather than a world shattering threat which you need to respond viciously.

    Good job Rhys. All we need is a comedian with a scientific nature and we have a new IMC when Brian and Robin stop.

  4. Worm November 30, 2011 at 3:37 pm #

    Um, yeah interesting guy. Not to support any stalker-type activity, but his company was “voted the sixth largest growth company in Houston in 2003.”

    Is that something that gets decided by vote? And that was 8 years ago. Impressive.

    • Stephanie November 30, 2011 at 3:44 pm #

      Hmmm, I found a profile on Facebook with the Burzynski movie as one of the ‘Likes’.

  5. Stephanie November 30, 2011 at 3:37 pm #

    Yikes! I would counter that Mr Moores is more of a ‘messed up juvenile with a big mouth’ than you and would kindly suggest that his negative opinions don’t serve him well either. Especially since he was too gutless to post his spite in the comments…

    Although maybe he’s just jealous that you made it into the Guardian ;-)

  6. Sean O'Keefe November 30, 2011 at 3:45 pm #

    It is curious how often these kinds of emails – one reguarly reads much the same at PZ Myers’ place – masquerade as a sort of concerned paternalism for the misguided cynic but ultimately drip with the same old ad hominems. This is what happens when one trespasses into the walled garden of “alternative” medicine and makes merely the politest enquiry for some evidence. I note Mr Moores has commented recently at the blog of a young woman undergoing treatment at the Burzynski clinic but I’m more surprised to read he has enjoyed a considerable career in the oil industry. In other words, he’s apparently a scientist. How staggering then that he should attack an obviously bright young man and attempt to close down what are entirely reasonable attempts to establish the efficacy of the treatment Burzynski offers. He should be ashamed.

  7. gus November 30, 2011 at 3:47 pm #

    An hour to read it…? took me all of 20 mins… and I’m dyslexic.

  8. Nidge November 30, 2011 at 4:42 pm #

    Picture of him here
    http://www.hopeforlaurafund.co.uk/blog/item/treatment-progress-update

  9. StarIdle November 30, 2011 at 4:49 pm #

    what a disturbing email (and even more disturbing man) and through which filter does he see ‘wasted energy and bitterness’??
    rhys i am glad that you have the support of so many prominent individuals, including simon singh, to help you navigate this assault – but i feel that with your brilliant and rational mind you’d be doing pretty well by yourself!
    please keep up the good work – your aptitude and attitude are inspirational!

  10. Mark McAndrew November 30, 2011 at 5:21 pm #

    Apart from the fact that ‘maturity’ obviously isn’t serving Russ so well, you will get plenty of this from the supporters of quacks and liars.

    Why? Because they don’t realise that’s what they’re doing. They believe.

    They see – or hear about – a couple of ‘miracle cures’ and that’s it. They’re converted. You cannot persuade them otherwise – but you can (and should) make sure as few others follow the same wrong path.

    Steve Jobs famously tried alternative therapies first. His opinion of that is now a matter of public record: they didn’t work ONE BIT, he wished he’d had real medical treatment first – and yes, of course, he might have lived.

    There are only two possible options with Burzynski. Either he hasn’t found a cure (in which case, he’s a complete scumbag), or he has found a cure – which he won’t share with anyone unless they pony up $200,000 first.

    “A cure for cancer! I could save millions of lives! A Nobel prize! My name in history! Nah, on second thoughts… I’ll just keep it to myself and charge people a second mortgage to try it…”

    Yup, he’s still a complete scumbag.

  11. Maffi November 30, 2011 at 5:48 pm #

    You aint doing so bad. It gets spooky when the death threats start arriving. After the first couple you kinda get used to them. I have.

  12. Jim G November 30, 2011 at 6:46 pm #

    Nice work Rhys – very impressed with your blog which I read about in The Guardian today. Keep up the good work. I discovered last week that my much loved Mum has an incurable form of cancer – so the scandalous behaviour of the Burzynski Clinic angers me very much! Hope you’re cool with me making a mention of you on my own blog?

  13. Jim G November 30, 2011 at 6:52 pm #

    Keep up the good work Rhys – impressed with your blog which I read about in The Guardian today. I’ve made a mention on my own blog which I hope you’re ok with? Mu much loved Mum was diagnosed last week with the same cancer Steve Jobs died from – and it angers me to think there are nutters in the US ripping people off for treatment that doesn’t work. So well done…

    • Ben Moores November 30, 2011 at 8:18 pm #

      It’s working well for Laura, Jim. Fingers crossed for continued results and thoughts and prayers for your mum.

      A displaced Brit amongst the “nutters in the U.S.”,

      Ben.

  14. Ben Moores November 30, 2011 at 7:55 pm #

    In response to StarIdle, Rhys’ posting struck a nerve because my family has stood behind Laura and her family 100% as she fights for a chance to see her infant son grow up. My father spent a significant amount of time with Laura when she was here in Houston after hearing about her story on Twitter. When he learned she was coming to Houston he offered any means of support possible.

    Personal investment/interests aside: How many of you posting opinions can say they’ve been in Laura’s shoes? If you have, I’m sure you’d agree that you’d do anything possible if you thought it would give you a chance to see your child grow up. Today’s MRI scan show a 36% reduction in the size of Laura’s tumor since the last scan 6 weeks ago.

    SeanO’keefe: Nowhere did he claim to be a doctor. Just someone who is deeply interested in Laura’s treatment which is proving to be working at this point. I don’t see how his personal career has anything to do with his postings?

    Ross O’Quinn our web design was done by alittlebitofsomething.co.uk. I was unaware webdesign was being discussed. However, it’s quite obvious we aren’t in PR, wouldn’t you say? Most of the others posting seem to have come to that conclusion already. As for the cultish following for the clinic ……. call it what you want. Results are results and Laura is recovering and every day her condition seems to be improving.

    Amber K: Not a donor to Burzynski, just a friend of a patient who is having great results from treatment. As for having something better to do …… Pot meet kettle.

    It’s easy to sound off when you’ve got no skin in the game. But, if you met Laura and sat face to face with her and listened to her speak about her family and her son and partner Ben you’d wish her all the health in the world, by any means possible. Most of you probably haven’t done enough research to realize that Laura’s brain tumor was inoperable. In other words THIS WAS HER ONLY OPTION unless she wanted to let the cancer take over her. Perhaps some of the cynics should step of their soap boxes and for once be happy that there is something great happening to an even greater person.

    My father, Russell Moores, who many of you have taken shots at in this blog post was certainly emailing Rhys with a little emotion and passion behind his words. I can say without doubt he has done more for others and given more to others than he has ever done for himself. His website, business successes, or facebook profile do not define who he is as some of you have childishly decided to reference. His actions do however, and I will stand behind those proudly any day. At 17, Rhys probably would have a hard time relating to a 59 year old who has a child, and lost parents prematurely to cancer. If some of you used your negativity to do something positive the world would be a much better place.

    • Rhys Morgan November 30, 2011 at 8:22 pm #

      Oh, bravo trying to take the moral high ground on this.
      No-one doesn’t wish Laura good health. It’s absolutely atrocious that you’re trying to make it out and say we don’t want her to get better. I’m genuinely offended by this suggestion.
      The problem is with Burzynski, not Laura. Please see this.
      There’s no good evidence that supports his treatment.
      He’s selling places to be in a clinical trial. Most of the time, you’re paid to be in clinical trials. It’s an extremely odd and morally dodgy practice.

      • Ben Moores November 30, 2011 at 8:50 pm #

        No attempt to take the high ground Rhys, so no need for the sarcasm. My post was simply stating my thoughts and feelings based on my own “connection” to Laura’s case. I appreciate that you’ve had your own trials and tribulations with your illness and wish you the best in your ongoing search for successful treatment.

      • Oldsaxon December 1, 2011 at 1:17 am #

        It’s appalling, Rhys….you don’t need to be defensive. No one should ever pay to be part of an experiment. The entire concept of it flies against everything that SCIENCE and the empirical study of life stands for. Anyone that actually thinks they have a solution to a problem would publish results…just stringing people along with a promise, covering it up with the cloak of trials….it reeks of scam. If they have a valid basis to continue the tests (after 34 years they might, one would think) then lobby for a grant and publish the results.

    • StarIdle November 30, 2011 at 8:41 pm #

      Ben you will appreciate that my comments to Rhys were in response to the email that he received from your father. Nothing more, nothing less.
      Rhys has done (and continues to do) a commendable job in rationally and logically outlining concerns in relation to the Burzynski Clinic. At no point has he made any criticism of Laura or any other patient – if anything, the motivation behind his original blog was to get clarity on the treatment’s viability for existing and potential patients.
      Nothing is served by becoming emotionally invested in this. The whole point of scientific and medical trials is to remove this bias. I do not need to meet patients to know that homeopathy is bogus. I do need to meet (another) dying mother to know that there are inviduals on this planet willing to exploit the situation for their own ends.
      I do not know whether to despair or to be awed that the greatest maturity shown in this whole debacle is by a young man still at school.

      • StarIdle November 30, 2011 at 8:43 pm #

        apologies for the typo – i do ‘not’ need to meet (another)…

    • Ross Quinn November 30, 2011 at 10:13 pm #

      Hi Ben

      My point was in reference to Mr. Stephens who purported to be a lawyer but spoke like someone who’d just watched LA Law.

      Note my name is Quinn not O’Quinn.

      It is brilliant Laura is getting better but are you aware of the work in the field of the placebo effect. If the good doctor has a cure to echo Rhys why is he charging people to be part of a clinical trial when it is commonplace to be paid for experimentation.

      I’ll leave you on a little point, my cultish point is related. The mind is a strong thing it can convince people things are there that are not and help people get better, hence why kids feel better when wounds are kissed better by a mother. Just because it acts like a miracle and sounds like a miracle doesn’t mean it is, just look at the amount of ‘miracles’ at Lourdes that can be explained by real science.

      Thanks for replying though. You don’t need to be the one taking the flak for the clinic.

    • LJM December 1, 2011 at 7:52 am #

      Ben, as Rhys points out, everybody who’s aware of Laura’s case is pulling for her. I understand the emotions involved, as I’ve lost several loved ones to cancer.

      We have two situations, here. One is wonderful and the other is terrible. Obviously the wonderful situation is that Laura is getting better. But the terrible situation is that an unethical organization is charging huge sums for people to take part in “clinical trials” for a treatment that has zero evidence to support its efficacy. There is as much evidence to suggest that Burzynski is responsible for Laura’s progress as there is to suggest that the air in that part of Texas is responsible for Laura’s progress. This is an objective fact, and in no way decreases the wonderfulness of Laura’s progress. And that can be emotionally confusing, which is what I think set your father off.

      I agree 100% that nobody should be judged by their, “website, business successes, or facebook profile,” but rather by their actions. The action your father took was to send a rude, condescending, and insulting email to a young man who has done nothing wrong, and quite a lot right (quite a lot more right than the vast majority of people his age).

      If your father is unable to apologize for that action, it’s quite fair to judge him for it, and his inability to apologize. We all occasionally say things we shouldn’t during emotional moments. But it’s how we deal with those mistakes, how we take responsibility for them, that defines us. I hope your father is able live up to your opinion of him and take responsibility for this mistake.

  15. Jim G November 30, 2011 at 8:52 pm #

    Hello Ben – thanks for your kind words re my Mum and that’s great news re Laura’s health. I guess Rhys has raised an important point that we all need to consider – and divorce from Laura’s and her family’s struggle with cancer, namely: is there any strong empirical evidence that the clinic’s treatment works? If so – what is it? Because if the clinic’s treatment is successful, it’s important to know why. Agreed we need to keep an open mind re alternative treatments, but without rigorous analysis, it will be prey to criticism. And I accept my statement about ‘nutters’ was perhaps impulsive, so I’m prepared to be put in my place by hard evidence. It sounds like the cost for treatment is also astronomical. What are the fees for treatment? How do we navigate the moral landscape re centers charging vast sums to save lives? All are questions it would be good to debate with you.

    • Ben Moores November 30, 2011 at 9:22 pm #

      Hi Jim,

      Agreed on all points. The treatment isn’t cheap, but at the same time it can be tough to put a price on a human life. That is ultimately what we are doing at the end of the day. While that can open the door to extortionate treatment costs, I think Laura would say she feels she was treated fairly. Like you,I also believe that it is important to keep an open mind in situations like this. If there is one thing we should have all learned by now it’s that we are all different and what works for someone might not work for another. Not to beat a dead horse, but I think the underlying reason for everything that has happened here is that while the clinics treatment may be controversial, the results, at least in this case, seem to be quite positive. Laura has faced and overcome enough negativity in the recent months that those pulling for her may get a bit sensitive when the critics pop out from the shadows. I understand the need to play devils advocate sometimes. I can also admit that I’m one of those that can let emotion bang the keys. Hopefully, Laura’s case and others that are currently undergoing similar treatment will provide evidence that the treatment IS effective.

      Have a good evening Jim. Cheers.

      • Mikael December 2, 2011 at 12:44 am #

        The thing is though, even if Laura goes into full remission, it doesn’t prove anything on its own.

        Cancer does that.

        To know if a medication works or not, you have to compare large samples properly, i.e. “only medication A for symptom X” vs “only medication B for symptom X”, but Burzynski doesn’t do that. Nor does he use any of the standard methods for measuring how much better someone gets.

        He takes a whole bunch of different symptoms, gives them his remedy, and adds other random chemos that are not even permitted off-label (/(sold from via his own pharmacy with 1000%+ profit) for those tumors, and then invents his own scoring system to describe how much better someone is getting.

        This is not good science in any way. Any scientist from any field will tell you that.

        • Miroslav December 4, 2011 at 2:04 pm #

          Can you source your claim that he uses unconventional measurement methods?

          Could help me fighting them youtube comments better.

  16. Romaq November 30, 2011 at 9:57 pm #

    Good show! I found your info from Skeptical Inquirer referring to Phil Plait’s, Bad Astronomy Blog. We have hospital bills of our own, so I understand the distress and inclination to try *anything* *anything* to fix a threatening medical condition. But if it isn’t evidenced based care, it could be anything with, “bleed suckers dry of money” at the top of the list.

    Good luck, and I’m glad for what you are doing. I hope this is the start of an auspicious career for you. :)

  17. A.C. Wright December 1, 2011 at 12:03 am #

    I find that comment really irritating, Rhys, you are an inspiration as a young person. As a teacher I am used to trying to communicate with smart teens who have opinions and the ability to think critically but who don’t engage with the world because ‘it isn’t cool to care’. To be a person with the critical thinking skills, the confidence and the passion to speak out at only 15 that is amazing. I find that many of the people who get called ‘big mouths’ (an insult often used on women who speak out) are just saying something that challenges the people around them to adjust their thinking schemas and some people just are not willing or open to questioning what they believe to
    be true. I don’t have to tell you to keep on doing what you are doing, because it is intrinsic to who you are, I know you won’t stop.

  18. Diana December 1, 2011 at 1:14 am #

    Hi Rhys.
    I’m a nurse and a skeptic and I’ve always been told that at desparate times I’d definitely try “anything and everything”
    Well, last month my mom had a health scare and needed major surgery. Cancer was a possibility, but thankfully the pathology came back negative for malignancy. In the cloud of confusion and worry, one thing became clear to me: I would spare no expense to help my mother, but I would never let her near “alternative” medicine (or even proven medicine that would be futile in her specific case) even if it was free. False hope is more than she and my siblings can handle, and it’s even worse than actual disease.
    More power to you. I hope you kick those charlatans’ asses.

  19. Maria December 1, 2011 at 2:31 am #

    If we had science based, effective cancer medicines, that would work,and people would trust,
    there would be no need for alternatives of any kind, and no need for Burzynski type of alternative clinics.
    But until then there will be always alternatives, not just for cancer, but for everything else., and if one is closed down, many others will start up, if the placebo is more effective then the medicine, people will want the placebo .
    Some alternative medicines could hurt, or even could kill people also, but thousands of people get killed every year from misdiagnosis, hospital,or doctor mistakes, from different prescription drugs, drug treatments. I think the doctors even have a name for this, I think they call it collateral damage, or something like that.
    People want effective, good medicines that would work, and cure people from all health problems, if we would be even close to that, we would not be talking here about Burzynski.

  20. George N. December 1, 2011 at 3:40 am #

    I believe it should be mentioned that a small number of patients see remission of cancer or regression of tumors whether or not they receive treatment of any kind. Given a large enough number of patients, even a worthless cure might report results. Also I note that cancer has no single cause, so it seems unlikely to me that one protocol can cure all cancers.

  21. Stu F December 1, 2011 at 3:12 pm #

    While its very good to hear that laura’s health is improving, taking individual cases as evidence of efficacy of a particular form of treatment is inherently wrong. Cancer in particular is an emotive subject, and its very easy to heavily weight stories of remission and recovery without looking objectively at the bigger picture and make a rational assessment of the overall efficacy of a treatment.

    Whether you have an emotional involvement or not, it makes no difference to whether the treatment being offered works or not. This can only be assessed with a calm, unemotional review of good quality evidence.

    It’s a strawman argument and quite offensive to suggest that Rhys wishes ill health on laura or any patient pursuing treatment from the Burzynski clinic. The original post was sensitive and balanced and acknowledged the terrible dilemas families face in when given terrible news.

    At no point has Rhys criticised people pursuing the hope of recovery. He has simply asked if there is good peer reviewed evidence that this treatment actually works. Without evidence, its just false hope. And selling false hope for $200,000 is wrong.

    If the clinic produces the evidence, and stops attempting to reverse the burden of proof and stifle debate all these arguments will disappear.

    Fantastic claims require fantastic evidence to support them. To date they haven’t produced any – why is that?

  22. FYI December 1, 2011 at 11:16 pm #

    Shontelle Hiron’s story (once given 6 weeks to live), 2000 Olympic torch carrier!

    PART 1 (1994): http://www.facebook.com/photo.php?v=2375706886150

    PART 2 (1995): http://www.facebook.com/photo.php?v=2375919211458

    PART 3 (2000): http://www.facebook.com/photo.php?v=1613798398914

    Note the facebook page is Shontelle Hiron’s so I imagine she is still alive.

    • Ajmay January 11, 2012 at 2:57 pm #

      And here is Shontelle’s website selling oxygen therapy tablets and other quackery -http://www.superoxystore.com/Index.php

      My favorite quote is “One of the major concerns in every Workplace today is OXYGEN DEFICIENCY”.

      Given this startling revelation, I’d have included exclamation marks after that quote, but she clearly prefers to keep it low key.

      And to borrow from other commentators – Anecdotes are not evidence of efficacy. Or to put it another way, it is hard to get testimonials from the unsuccessful treatments (ie: dead people).

  23. David December 2, 2011 at 8:33 am #

    I just wanted to clarify what people are seemingly unaware of.

    A) only palliative care is available from the NHS or other institutions around the world for brain cancer
    B) if lack of evidence is your issue, address this with the doctor
    C) this woman and her family have made their own informed choice (free will)

    • Stu F December 2, 2011 at 12:24 pm #

      In response:-

      A) only palliative care is available from the NHS or other institutions around the world for brain cancer

      This isnt a good argument for pursuing therapies which haven’t demonstrated efficacy. Perhaps there is a good reason for a worldwide concensus that palliative care is the most appropriate form of care? There are many life threatening and less serious conditions which cannot be cured using conventional medicine, and these are often area where dubious pseudo-science thrives based on desperation.

      B) if lack of evidence is your issue, address this with the doctor

      People have been for years, problem is that the doctor in question seems to be stuck in an endless cycle of Phase II trials and doesnt allow anyone to peer review the data from them. The doctor is the only one who really knows what the result were good or bad. When he is charging $100-200,000 per treatment, does the conflict of interest not cause you concern?

      C) this woman and her family have made their own informed choice (free will)

      No-one has suggested they should not have the right to make that choice. Is it truly ‘informed’ though if it is based on incomplete information provided by a clinic which has such a vested financial interest for fantastical claims which fly in the face of other research and the concensus of advice?

    • David December 3, 2011 at 6:58 pm #

      Just to advise David above,
      palliative care is not the only treatment for brain tumours. There are many cancer treated successfully by radiotherapy and neurosurgery, often in combination. Particularly in young patients. Treatments that have a well established evidence base and risk/benefit analysis.

    • Lawcat December 15, 2011 at 8:12 am #

      You state: “only palliative care is available from the NHS or other institutions around the world for brain cancer.”

      In 1967 I started having Jacksonian epileptic fits. iwas referred to the Royal Children’s Hospital in Melbourne for tests. Waiting for the resiults were two NeurosurgeonsNeurosurgeon Radiation oncologistand a medical oncologist.

      even the Iwould have had surgey then radiation and chemo.

      Lucky for me there was no tumour.

  24. Beatis December 2, 2011 at 11:06 am #

    Just for the record: not all cancer patients who know their cancer has progressed beyond cure, by definition turn to alternative therapies.

    Mr Moores is right in saying that Laura is free to chose the treatment she thinks is best for her, but how is it that he thinks others not free to question the trustworthiness of the treatment she chose? After all, everyone knows there is an army of charlatans about waiting to cash in on the despair of people whose illness is beyond cure. Having cancer is bad enough without being exploited and deceived and I’m very grateful there are people who are trying to protect us from that.

  25. Lou Doench December 3, 2011 at 1:24 am #

    Tossed a link your way Rhys. I think it takes serious stones to keep at it in the face of threats like these. Keep it up young man!

    Oh, and BTW, are you aware that your name sounds like you should be starring in a Katherine Kurtz “Derynyi” novel. Because that is all kinds of awesome.

  26. Graham Shevlin December 3, 2011 at 3:31 pm #

    I have a technical term for this emailer.
    Drive-by bloviating wanker.
    These emailers or commenters are like pigeons. They fly over, crap on you and then disappear.

  27. rhys murphy December 5, 2011 at 6:47 pm #

    you are a creep my website is so cool compared to u

  28. Guy McCardle December 6, 2011 at 10:08 pm #

    I suppose someone had to come forward and fill the void left by Mabus. Remember that guy? Burzynski’s attack dog wanna be lawyer has proven just how far quacks will go to protect their stream of income. He preys on the dying and vulnerable. I’ll bet his patient’s even owe him money after they have passed.

    You all might enjoy reading my new skeptically themed website and listening to my podcast at The Inconvenient Truth.

    • brendan o neill December 10, 2011 at 5:13 pm #

      GUY MC CARDL U MORON LAURA’S TUMOUR HAS SHRUNK 36% SO FAR. HOW DAFRE YOU CALL HIM A QUACK YOU ARE A MORON WATCH THE DOCUMENTARY

      • Lawcat December 17, 2011 at 6:53 am #

        what the advertorial? Also don’t shout it’s rude

        • brendan o neill December 19, 2011 at 4:53 pm #

          are all the people in it making up that they were cured by bruzinski? Is that what you think then, all the people are lying? they didn’t really get cured there, bruzinski hired them for his ‘advertorial’. have you watched it? bet you haven’t even watched it.

  29. Victor Casados December 9, 2011 at 8:38 pm #

    I think that many who have posted here about Laura’s plight miss the point (or *a* point anyway).

    That we ALL wish her and her family well is certainly true.
    However, how does sending her to a fraud contribute to her wellness?

    Especially a fraud who:
    - Contrary to any accepted standard of medical ethics has charged people hundreds of thousands of USD to get an experimental treatment?
    - A treatment for which no compelling evidence can be shown?
    - A treatment which, in 34 years, has never been subjected to a blinded study for efficacy?
    - A treatment that no one can suggest even the most thinly credible reason for not subjecting to such a study?
    - A treatment which, so far, has the same approximate success rate and outcome improvement numbers as amygdalin (aka Laetrile)?
    - A treatment that cannot defend itself from even the most flaccid detractors, except by the same methods a schoolyard bully employs?

    How kind is it to take people’s money and offer them hope only to dash the vast majority’s to the ground?

    This sort of behavior is unethical and cruel. The Burzynski clinic survives only because it has managed to find the loopholes in current law.

    It takes advantage of the desperate and the hopeless, and that is the worst kind of villainy, in my opinion.

    I defy these charlatans to show me one SHRED of non-anecdotal evidence.
    Many others have so defied them and they have yet to answer.

    • brendan o neill December 10, 2011 at 5:11 pm #

      HAVE YOU CHECKED LAURA’S BLOG RECENTLY? 36% TUMOUR REDUCTION. YOU ARE ALL NARROW MINDED IDIOTS

      • Dermot December 15, 2011 at 7:07 am #

        there issuch a thing as remission mate. my dad’s cancer was in remission for 5 years. It came back though.

      • John van Houten December 15, 2011 at 10:44 am #

        Do you always have to SHOUT to get your point across?

      • Abby Rupert December 17, 2011 at 9:53 pm #

        Lets not forget she had conventional radiotherapy and chemo before the quack stuff.

        • brendan o neill December 19, 2011 at 4:51 pm #

          yea and the doctors told her chemo and radiation didn’t work and that she was going to die! If laura had listened to all you people and never went to texas she would be dead by now!

  30. Victor Casados December 9, 2011 at 8:44 pm #

    As for Mr. Moores: His mother should have taught him that (not so) thinly veiled expressions of envy are unbecoming of anyone.

  31. Leah December 14, 2011 at 4:07 pm #

    I’ll admit I’m a little late to the party on this topic… what can I say, I’m here now and have been reading a lot about Burzynski since I came across the story of Rhys, his blog and the ensuing legal chaos on Twitter.

    This letter is a shining example of someone determined to take offence where none is intended. It’s the point that’s being missed here; no-one has directed anything other than sympathy and support toward the cancer patients and their families who have taken the decision to visit the Burzynski clinic. Your moral outrage does not belong here. The intent behind these articles and the continuing comment on Burzynski is not to insult these people, but to inform, and to give those now researching cancer treatments a fuller picture before they pin their hopes and savings on an unproven therapy.

    I don’t know many 17 year olds, but I was one fairly recently, and I am of the opinion (yes, opinion- it’s still not illegal to have them) that Rhys Morgan seems to be one of the less juvenile and more mature ones out there. Perhaps Mr Moores was reading a different blog than I was?

    And as for one person’s comment, that “If some of you used your negativity to do something positive the world would be a much better place”…. Isn’t that exactly what Rhys Morgan is doing here? Using his own experience and scepticism to highlight an issue which would otherwise have passed most of us by.

  32. Matt December 14, 2011 at 8:55 pm #

    Can’t add much more than has been said in the way of analysis, but I just wanted to offer some support; well done!

  33. John van Houten December 15, 2011 at 10:41 am #

    Rhys,

    I just wanted to say that you are doing courageous and important work.

    Sometimes it seems like the world is divided into two parts: people who can’t think critically and people who are too timid, scared or inarticulate to tell them. Your example is a shining light.

  34. John van Houten December 15, 2011 at 11:01 am #

    Unfortunately when people are afflicted with a life-threatening disease that is beyond our best scientifically proven treatments they become desperate for a cure, any cure. This is understandable, probably instinctive, and rather sad.

    What gets me angry is that there is a whole industry of quacks of every color who are willing to sell hope to the vulnerable at (almost without exception) a very high price.

    A acquaintances of mine was in such a desperate position, suffering from Lymphoma. She was pushed by a well-meaning (but ultimately unhelpful) friend of hers to try an ‘alternative’ therapy which included sitting under a copper frame in the shape of a pyramid.

    What a complete waste of her last precious days, and her last precious savings. This “treatment” cost her tens of thousands of dollars.

    These shameless charlatans must be stopped from preying on the vulnerable.

  35. Paul December 15, 2011 at 11:49 am #

    Well done mate, takes eternal vigilance to keep the barbarians at the gate.
    There are two players in this whole unpleasant trade: the merchants of snake oil, and on the other side, credulous and superstitious customers, desperate to believe, and who lack the resources to question and analyse.
    Both sides will be vocal and angry.

  36. Natalie January 8, 2012 at 9:54 am #

    “I just wasted an hour…”

    That sounds like that would be his fault.

  37. David January 14, 2012 at 8:53 am #

    http://Www.hopeforlaurafund.co.uk

    Check the blog

    Her tumour is now 56% smaller than baseline on antineoplastons since August 2010 with a Gliblastoma Multiforme. The cancer will be gone in 2-4 months.

  38. Stephen Foster January 18, 2012 at 4:22 pm #

    Rhys,

    Just another note to thank you for saying what you do. I don’t know how we will ever make the know-nothings and woosters shut up. Instead, I hope to counter them with an armor of encouragement.

    Be encouraged, young man, the sound and fury that comes back to you may just be an indication of how close you came to the mark.

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